Day 1

Kage Baker hated waiting.

Anticipation was not her favourite state. The wait for something did not heighten the excitement for her, nor add spice to the occasion. The only manifestation she enjoyed was wrapping up birthday presents the night before, and then displaying them to gently torture the recipient with futile curiosity – and she herself did go happily nuts trying to figure out what was under the ribbons and paper. A dedicated present shaker, Kage.

When something for which she had been longing became finally available, she wanted it right then. We frequently went looking for soundtracks to movies she liked on the way home from the theatre – Kage wanted to continue that experience right now. Sometimes I just didn’t tell her when some special film or book or game was coming out, just so I’d have a chance of giving it to her for her birthday or Christmas – and if she found out anyway, there was no help for it: she went after what she wanted like a hunting cheetah.

So what’s wrong with instant gratification she’d say reasonably. It’s not like I get bored with these things right away.

And in that, annoyingly, she was right. She didn’t get bored with new toys. Once her attention was engaged, it stayed that way – it’s why she was content to watch The Wrong Box (for which she had hunted for decades) over and over and over. Her favourite video games remained her favourites forever. And once Kage found something she loved – shoes, jeans, a particular rubbing spice for meat, a specific shade of sunglasses – she went to great lengths to duplicate it whenever she used it up.

Some of it may have been the Asberger’s. Kage disliked change, especially when forced on her from outside. But some of it was just that she never wanted to leave that level of satisfaction that she felt when she achieved acquisition. She hated waiting: but she could, conversely, prolong the joy of finally getting something forever. It’s a rare combination.

For my part – I learned long ago to be patient. I can anticipate happily, and enjoy a wait. (It’s why I always carry a book or ten with me.)  I think Kage taught me some of her staying happy trick.  I’d like to think I taught her to wait a little more peacefully, in turn. Countdowns were a big help in that. She learned to enjoy crossing things off the calendar: with big, malicious red X’s, usually, exulting over the destruction of another day between her and her desire.

I’ve waited 50 years to get rid of this damned kidney. I spent my high school years flat on my back – and not in any interesting John Hughes teen flick way, but literally staring at the ceiling because I couldn’t stand up. I became an expert in throwing up into bags, in empty Tupperware, in waste baskets and extra-large Slurpy cups – you throw up a lot with uremia. Admittedly, the slightest twinge of pain in my side now induces a panic attack in me – but I can drive several hundred miles bent over at a 20 degree angle.

I’ve been corseting since I was 14 years old. One of my sillier doctors was convinced I had a floating kidney, and advised my wearing girdles to keep it in place. Of course, that only helps if you put the damn thing on before you stand up … wiggling into a corset while lying down is not easy, even when one is a lithe 16.

I was so happy to be rid of the boning when I was 18, that I gave up most underwear for a while. But then I joined the Renaissance Fair and promptly ended up back in corsets for the next 40 years … but at least I could put them on standing up. And make them prettier, too.

You have time to come up with an astonishing range of coping mechanisms when something hurts for a half century. Patience wears out very quickly – but stubborn rage can get you through a lot. Burning hate, endless wrath, the determination to never, ever let your enemy win – my, that becomes a real help. My sweet pixie nature curdled a bit over that time, but my stamina became something positively mythic.

Tonight is, I sincerely believe, the last time I will lay down to sleep with the fear I’ll wake up with those iron teeth of pain in my side. If the laparoscopy works, the new incision will be covered with a mere band-aid: but even if they have to cut wider, and leave me with another foot-long scar, I won’t mind at all. It’ll be the last big red X on that particular calendar.

Tomorrow is Day Zero.

 

 

 

About Kate

I am Kage Baker's sister. Kage was/is a well-known science fiction writer, who died on January 31, 2010. She told me to keep her work going - I'm doing that. This blog will document the process.
This entry was posted in Uncategorized. Bookmark the permalink.

10 Responses to Day 1

  1. Carolyne says:

    All will be well and all will be well and all manner of things will be well.

    Liked by 1 person

  2. Allison Hansen says:

    Kathleen I am wishing for you a easy breezy surgery, and a zippy recovery. Waiting patiently for the ” I kidney you not” puns over your *next* 50 years.
    Be well, heal fast.

    Allison

    Like

  3. Luisa Puig says:

    Oh boy, oh boy, oh boy! I, too, enjoy anticipation. Hope your surgery is smooth and totally successful. Best wishes, et cetera!

    Like

  4. maggiros says:

    I keep trying to write something clever, sensitive, loving, and upbeat and it keeps coming out stupid. So I’m just going to tell you how much I adore you, and let it go at that. OK, and some big, dopey hugs, too. Enjoy the drugs.

    Like

  5. Janet says:

    Just to wish you well, and to say how much I enjoy reading your posts. Looking forward to reading more once you’ve recovered from the operation and the drugs.
    Always having something to read — that’s just how I feel. (Paperbacks, gadgets, and all.)

    Like

  6. Dina says:

    Holding you in my thoughts & sending you lots of Good Healing Juju. Thank You for sharing your journey with us. Gentle Hugs

    Like

  7. Medrith says:

    Prayers and well-wishes!

    Like

  8. mizkizzle says:

    Yay! Bye-bye malevolent kidney!
    The floating kidney theory isn’t all that odd, but unless the doctor who broached it was a time traveller from before X-rays were invented, wouldn’t she know there was a simple way to look inside you and find out if your kidney were firmly tethered or not?

    Like

  9. Lynn says:

    Best wishes for a quick surgery and speedy recovery. Please let us know how it went (or ask Kimberly to let us know) so we can breathe again. And what maggiros said.

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s